We're inviting international designers to book for the International Angelman Syndrome FDC Collections Presentation
The Angelman Syndrome FDC Collections Presentation takes place in London 30 October 2021.
Contact Joanna Marcella
Mobile: +44 (0) 7940 647 102
[email protected]
Our Angelman Syndrome FDC Collections Showcase and Presentation provides a platform for international fashion designers, artists & beauty entrepreneurs to showcase and present their work to a global audience. We are inviting emerging international fashion and accessory designers from ages 19-99 years and from all parts of the world to take part and attend a Meet the Press Session.
These events will provide a platform for at least 15 international fashion and accessory designers at a London, Birmingham or Manhattan presentation with the general public, invited guests and media attending. We are presenting our current award winners and hosting a designer award.
The Collections Showcase and Presentation is a philanthropic event and we are raising awareness and funds for the charity FAST- The Foundation for Angelman Syndrome Therapeutics
http://www.cureangelman.org/
To book a place in the collections presentation please send an email to request a booking form for the city of your choice and send some images or sketches of a current collection and a short bio for approval to: [email protected]
Booking link:
We are launching our official brochure that combines Fashion and Style and will be distributed to an international audience. We seek to show Haute Couture Fashion, Haute Perfume, Haute Cuisine, Culture and Travel as well as stories about and greetings to the Angelman Syndrome global community. To book a page in our brochure request more information.
The Angelman Syndrome FDC Collections Presentation takes place in London 30 October 2021.
Contact Joanna Marcella
Mobile: +44 (0) 7940 647 102
[email protected]
Our Angelman Syndrome FDC Collections Showcase and Presentation provides a platform for international fashion designers, artists & beauty entrepreneurs to showcase and present their work to a global audience. We are inviting emerging international fashion and accessory designers from ages 19-99 years and from all parts of the world to take part and attend a Meet the Press Session.
These events will provide a platform for at least 15 international fashion and accessory designers at a London, Birmingham or Manhattan presentation with the general public, invited guests and media attending. We are presenting our current award winners and hosting a designer award.
The Collections Showcase and Presentation is a philanthropic event and we are raising awareness and funds for the charity FAST- The Foundation for Angelman Syndrome Therapeutics
http://www.cureangelman.org/
To book a place in the collections presentation please send an email to request a booking form for the city of your choice and send some images or sketches of a current collection and a short bio for approval to: [email protected]
Booking link:
We are launching our official brochure that combines Fashion and Style and will be distributed to an international audience. We seek to show Haute Couture Fashion, Haute Perfume, Haute Cuisine, Culture and Travel as well as stories about and greetings to the Angelman Syndrome global community. To book a page in our brochure request more information.
Our Angelman Syndrome awareness campaign
I'm Joanna Marcella the founder of the Angelman Synrome collections showcase; Manasseh is my grandson, he's 12 years old, he is one of the happiest children I have ever met and it’s because he has Angelman Syndrome; have you heard of it or do you know anyone who has?
ABOUT ANGELMAN SYNDROME
Angelman Syndrome is a neuro-genetic disorder that manifests itself in the form of severe developmental and intellectual delay and is caused by the deletion or inactivation of genes on the chromosome 15 which is maternally inherited. This rare condition affects approximately 1 in 25,000 people and is usually diagnosed between the ages of 18 months and 6 years.
Individuals with Angelman Syndrome tend to have a happy demeanour, characterized by frequent laughing, smiling and excitability. Many individuals with Angelman Syndrome are attracted to water and take great pleasure in activities like swimming and bathing.
People living with AS require life-long care, intense therapies to help develop functional skills and improve their quality of life, and close medical supervision often involving multiple medical interventions.
Absent speech or some limited speech, balance difficulties, seizures and life-long care are the hallmark characteristics of Angelman Syndrome and often undiagnosed or misdiagnosed as autism or cerebral palsy since these other conditions have some similar characteristics.
ABOUT ANGELMAN SYNDROME
Angelman Syndrome is a neuro-genetic disorder that manifests itself in the form of severe developmental and intellectual delay and is caused by the deletion or inactivation of genes on the chromosome 15 which is maternally inherited. This rare condition affects approximately 1 in 25,000 people and is usually diagnosed between the ages of 18 months and 6 years.
Individuals with Angelman Syndrome tend to have a happy demeanour, characterized by frequent laughing, smiling and excitability. Many individuals with Angelman Syndrome are attracted to water and take great pleasure in activities like swimming and bathing.
People living with AS require life-long care, intense therapies to help develop functional skills and improve their quality of life, and close medical supervision often involving multiple medical interventions.
Absent speech or some limited speech, balance difficulties, seizures and life-long care are the hallmark characteristics of Angelman Syndrome and often undiagnosed or misdiagnosed as autism or cerebral palsy since these other conditions have some similar characteristics.
A quote from a mother of a child with Angelman Syndrome
"This journey that each Angel Parent is on is not a tale of gooey gooey gum drops and sugar coated unicorns flying in on a rainbow. It is a tale of exhaustion, seizures, hundreds NO thousands of doctor visits and hospital stays, poop parties, and endless fighting. Endless fighting you say? Yes, fighting systems. Every system you can imagine, we fight. We fight to get proper meds to control seizures. We fight to get the best appropriate education. We fight against ignorance in every area of our lives. We fight loneliness and depression. We fight the feelings of defeat. Finally, for me I fight with the inner voices of self pity vs. strength"
"This journey that each Angel Parent is on is not a tale of gooey gooey gum drops and sugar coated unicorns flying in on a rainbow. It is a tale of exhaustion, seizures, hundreds NO thousands of doctor visits and hospital stays, poop parties, and endless fighting. Endless fighting you say? Yes, fighting systems. Every system you can imagine, we fight. We fight to get proper meds to control seizures. We fight to get the best appropriate education. We fight against ignorance in every area of our lives. We fight loneliness and depression. We fight the feelings of defeat. Finally, for me I fight with the inner voices of self pity vs. strength"